Ari talks about growing up with Alport Syndrome, when his family became aware of his condition and how his and their understanding of the disease evolved as he grew up. He talks about being sick as a kid, his hearing loss, and how his health grew steadily worse and impacted his education. This episode covers the kidney-related side of Ari’s life from birth to age 19 (leading up to his first transplant).
To learn how to become an organ donor, click here.
Baby photos of Ari in Samoa:
Ari in Alaska:
Decherd Family Photo from 1979 that I included pretty much just to show you Ari’s suspenders: